Episode 157 of The On-Air Advocate
Original Airdate: November 25, 2019
Host: Tammy Flynn, Connect with Tammy on Facebook @theonairadvocate.
Guest: Dede Dankelson mother, caregiver and founder/creator of Pete’s Diary
Guest’s Background: At Dede’s 20 week ultrasound they were told that there was an issue with Pete’s jaw, kidney and the possibility of a multitude of other issues. They suggested to them they may want to consider aborting at this point. Taking into consideration the other unknown issues. During this time is when Dede learned the importance of proper communication between medical staff and families.
Pete was later born premature and spent his first 102 days in the NICU. He was diagnosed with Goldenhar Syndrome. At that point Dede started to journal each day writing about the journey in her son’s Pete’s voice to help people understand what he was going through. It would later become its own platform “Pete’s Diary”.
Dede’s Lightbulb Moments:
Where To Find Pete’s Diary On Social Media & How To Connect With Dede And Pete
Youtube @Pete’s Diary
Tammy’s Final Thoughts:
Listen or watch the full episode below: